We met Dr. Cochrane yesterday for a routine followup appointment and turns out the headache is not over yet! He measured Nikhil's head size as he usually does, but pointed out that his head hasn't grown since his surgery; which was almost a year back. If his head size does not go up in the next 6 months, he suggested we get a scan done to make sure there is enough fluid between his skull and his brain. If they don't see any fluid in the scan, a second surgery most likely is in store for him.
I am so upset. Finally when I thought all is over and well, this thing has cropped up like a parasite that does not go away. The thought of another surgery gives me shivers. Dr. also said that this one will be more extensive than the last one because they will have to increase the skull's diameter all over to give the brain some room to grow.
We have scheduled another appointment after 6 months, which will be in September. I am travelling to Oman and India for 3 months to see our family. I am hoping I will able to keep these negative thoughts aside for a while and enjoy and also give the kids a chance to enjoy with their grandparents. I will be going nuts over his head size for the next 6 months. Our head grows in millimeters so I hope I'll be able to measure his accurately.
I am so upset. Finally when I thought all is over and well, this thing has cropped up like a parasite that does not go away. The thought of another surgery gives me shivers. Dr. also said that this one will be more extensive than the last one because they will have to increase the skull's diameter all over to give the brain some room to grow.
We have scheduled another appointment after 6 months, which will be in September. I am travelling to Oman and India for 3 months to see our family. I am hoping I will able to keep these negative thoughts aside for a while and enjoy and also give the kids a chance to enjoy with their grandparents. I will be going nuts over his head size for the next 6 months. Our head grows in millimeters so I hope I'll be able to measure his accurately.
... back from our vacation
Hey ! We are back. 3 months were awesome, except for the plane journey (don't ask!). We first flew to Muscat and then after a 2 month stay, we went to India for another month. It was the monsoon season in India. The dry, hot, parched summer is followed by the rainy season. Its cool, green, fresh and beautiful. I just love it!
The kids enjoyed a lot. They ate everything that they don't get to see in Vancouver. All the tropical fruits, veggies and drinks. I refrained from giving them Indian street food but it didnt stop me from eating it. I have grown up eating that, so the 'hygiene' part doesn't scare me much ;-) Its lip-smacking tasty and I miss those food carts like anything.
Anyways, so I have tried to get a good reading of his head size but he keeps moving and pulling the measuring tape, so it hasn't been easy. Every time I get a different reading so I know its not precise, but at least it doesn't read less than whats in the expected range.
The kids enjoyed a lot. They ate everything that they don't get to see in Vancouver. All the tropical fruits, veggies and drinks. I refrained from giving them Indian street food but it didnt stop me from eating it. I have grown up eating that, so the 'hygiene' part doesn't scare me much ;-) Its lip-smacking tasty and I miss those food carts like anything.
Anyways, so I have tried to get a good reading of his head size but he keeps moving and pulling the measuring tape, so it hasn't been easy. Every time I get a different reading so I know its not precise, but at least it doesn't read less than whats in the expected range.
September followup...
(Sept 11, 2014). We saw Dr. C yesterday. As you can imagine, I had a knot in my stomach which wasn't going away. Salil came along which was great. The good news is, his head size has gone up from 48.3 mm to 49 mm ! Isn't that awesome !! He checked him and said, "He is fine. Don't come to see me before a year ! " He also checked his eyes and he feels they are fine too. All is well !! All is well !! We are so relieved and so so so happy today ! For one whole year I don't need to worry about his head growth or anything. Thank you God and thank you all for your blessings :-)